Saving Tate
Help us give Tate a chance at treatment before time runs out.
Tate is a little boy full of life, love, personality and joy. He has Sanfilippo syndrome, a rare terminal degenerative condition often described as a form of childhood dementia.
Without treatment, children with Sanfilippo gradually lose the skills they once had, including speech, mobility and independence.
"I never want money to be the reason my son misses his chance."
We are fighting for one thing: time.
Time for Tate to stay Tate.
Time for treatment to slow this condition down.
Time for more memories, more laughter, more life.
Meet Tate
Tate is a beautiful little boy with a huge personality. He is full of life, cheekiness, love and energy, and he brings so much joy to everyone around him.
He is loved beyond words, and like any child, he deserves the chance to grow, make memories, and enjoy the future ahead of him.
But Tate is living with Sanfilippo syndrome — a rare, progressive condition that steals abilities over time. Behind the smiles and the everyday moments is a heartbreaking reality: without treatment, his condition will continue to worsen before taking him.
That is why we are fighting so hard. Not because Tate is defined by his diagnosis, but because he is so much more than it.
"He is full of life, full of love, and worth every fight."
What is Sanfilippo Syndrome?
Sanfilippo syndrome, also known as MPS III, is a rare genetic metabolic condition. It affects the body's ability to break down certain sugars properly. Because the body cannot clear these substances the way it should, they build up and cause progressive damage, particularly to the brain and nervous system.
Sanfilippo is often described as a form of childhood dementia because children gradually lose skills they have learned over time.
Children with Sanfilippo may appear well in the earlier stages, but the condition is degenerative. Over time, the impact becomes more severe.
If treatment is not accessed
Without effective treatment, Sanfilippo syndrome continues to progress. Tate will gradually lose more and more of the abilities he has now. The future can involve increasing neurological decline, loss of independence, worsening symptoms, and a much more limited quality of life before a premature death. Life expectancy is 10–15 years old. Tate is turning 6 this year.
That is why early intervention matters so much. With a condition like this, time lost cannot be replaced.
The Treatment We Are Fighting For: UX111
UX111 is a treatment being developed for children with Sanfilippo syndrome. The hope behind this treatment is that it can help address the missing enzyme involved in the condition, with the aim of slowing the progression of disease.
For Tate, treatment is not about chasing perfection. It is about preserving as much of him as possible.
The goal is to slow the damage the condition causes, and with a progressive disease, the timing is critical. The earlier treatment can be accessed, the better the chance of preserving the skills and development Tate has now.
Why urgency matters
Sanfilippo does not wait. It continues to progress. That means every month matters. We are fighting now because we want Tate to have access to treatment at the earliest possible opportunity. We do not want to look back knowing that funding delays stood in the way of his chance.
Accessing treatment may involve enormous costs, including the treatment itself, travel, accommodation, medical-related expenses and the practical realities of getting Tate where he needs to be.
We want to be in the position where, if Tate gets the opportunity, we can say yes immediately.
Because no parent should have to say, "My child could have had treatment, but we couldn't afford it."
Tate's Journey
Our journey to diagnosis has been full of confusion, fear, hope, heartbreak and uncertainty.
Like many families, we started with questions. We noticed differences, concerns, and signs that something deeper might be going on. There were conversations around autism, medical investigations, scans, and ongoing appointments. At one stage, one possibility seemed to be taken off the table, only for it to come crashing back into our lives later.
From cranial concerns and hospital investigations to brain imaging and further testing, we were pulled into a world no parent ever wants to enter.
Eventually, we were faced with the devastating reality of Sanfilippo syndrome.
Since then, life has changed completely. I am still parenting, still loving, still trying to create joy and normality for Tate every day — but now everything comes with urgency.
We are not just living day to day. We are fighting for his future.
Quick Facts
Tate is a little boy living with Sanfilippo syndrome — a rare degenerative condition
It is often described as childhood dementia — children gradually lose learned skills
Life expectancy is 10–15 years — Tate is turning 6 this year
Early treatment access is critical — every month that passes matters
We are fundraising urgently to give Tate the best possible chance at treatment
Raising Awareness, Raising Hope
Since sharing Tate's story, support has grown far beyond what we ever expected.
What began as a personal plea to friends and family quickly gathered momentum. Tate's story has reached people across the UK and internationally, with coverage and support spreading across multiple countries.
We are incredibly grateful for every single person who has donated, shared, attended an event, offered a prize, or helped amplify Tate's story.
This is not a passive fundraiser. We are actively campaigning, organising events, speaking to media, connecting with supporters, and doing everything possible to build awareness and momentum.
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How You Can Help Tate
There are several ways individuals and businesses can support Tate's journey.
Donate
Every donation helps us move closer to treatment access and related costs. No amount is too small.
Sponsor
Businesses can support Tate through direct sponsorship, event sponsorship, raffle prizes, fundraising partnerships, matched giving, or awareness support.
Share
Sharing Tate's story helps us reach the people who may be able to change everything. Every share matters.
Fundraise
Schools, gyms, businesses, community groups and individuals can host events or choose Tate as their fundraising cause.
Why Businesses Support Us
Support a local child and family in urgent need
Be part of a powerful, real-life cause that people connect with
Show meaningful community impact through your brand
Help fund life-changing treatment access for a child
Support awareness of a rare disease that affects families worldwide
Tate Being Tate
Follow Tate's Journey
You can follow Tate's story, support our fundraising, and share our mission through the links below.